Creating a Pan-Canadian Learning Health System for Neurodevelopmental Disorders

Despite the range of initiatives and increased attention paid to neurodevelopmental disorders, there is still a gap between what is being learned and achieved in the research community and the actions being taken to improve patient care and experiences in health systems across Canada. This is particularly important as policymakers, healthcare workers, stakeholders and researchers increasingly approach neurodevelopmental disorders through a ‘lifespan’ lens, acknowledging that while many disorders begin in early life, they have an impact throughout childhood, adolescence and adulthood, which requires system planners to account for the many transitions in support individuals and families will face.